Showing posts with label neurofibromatosis. Show all posts
Showing posts with label neurofibromatosis. Show all posts

Tuesday, October 6, 2015

My October Goals: More Decluttering, More Reading, and a Charity Walk

Tyrone sitting in the tote I'm using for Limbo books.
In September, I had too many goals. I realized it within a week and let myself off the hook for some of them.

The goals that stuck were:
1. So Damn Domestic Clutter Free Countdown.
2. Blog my way through the countdown.
3. 750 Words daily writing challenge.

None of them were perfect, but all of them were finished. Sadly, 750 Words has a different definition of "finished" than I do. I'm okay with writing twice as much the next day if I skip a day. They consider that failing. One month I will complete the challenge by their standards and you will be mine, Sassy Horse Badge!
I want it. 750words.com
It's too late for me to sign up for the October challenge with 750words.com, but I will continue to use it as a brain dump and to write drafts.

My goals for October are as follows:


1. Remove all decluttered items from my home. I was originally only going to give myself a week to do that, but it's a bigger job now that I know I have to check everything for roaches and sanitize it before it goes anywhere. (It should be okay. I packed everything up in air tight-ish containers. Eeeee.)
2. Read more! I've decided to give myself a daily page number goal of 75 pages.
(More about this below.)
3. Promote and prepare for the NF Walk in L.A. on October 25. A sub-goal of this is to keep up my routines and start moving them earlier in the day. I have a few events scheduled, including the walk, that start early in the morning, and I'd like to be rested and strong for them.


I thought about structuring this month differently. Instead of having task-based goals, I thought about using the Todoist app to set productivity goals instead. "Complete X number of tasks per day." I might do something like that for November, when I have big things planned, (wink wink), but it doesn't feel right for this month.

These used to be organized by color.
It was beautiful.
I like the idea of a reading goal because at the end I can say, "Look how many books I finished!" The idea came when decluttering my books last month. I realized I have four long shelves of books I haven't read, or haven't read in a long time.

Four shelves is the amount after decluttering 60 books! 


Many of my books are "In Limbo," because they very well may be decluttered if they aren't life-changing and referenceable. I'm also reading a few library books for book clubs, and because I couldn't resist.

75 pages is not an ambitious goal at all. I purposefully set a low number so it would be achievable without getting in the way of all the other tasks. It's still more than I had been reading, and that's how goal setting works sometimes. It doesn't always have to be a big jump. So far I've read closer to 300 pages a day, because I got in the zone.

I finished reading my first book of the month yesterday and it felt great, as that particular accomplishment always does. I'm reading four at a time in different genres, which I wasn't sure was the best idea, but I'm enjoying it.

I think I'll go read right now!

Friday, September 18, 2015

SDD Clutter Free Day 18: TV Comedy DVDs and Fluid Art Collections


It's Day 18 of the So Damn Domestic Clutter Free Countdown, and time to declutter 13 items. Yesterday, someone commented on my declutter picture, "Why don't you just keep them? Even just for deco." I had decluttered 14 special edition DVDs, most of which were movies I loved.

That comment caused me to doubt my decision. I even doubted this whole process. My online friend had followed with, "I dream of someday living in a large house, surrounded by all my lovely things." I started thinking, "Wait, that's my dream!" But it's not.

We think it's security to own a lot of stuff, but we forget how easily a natural disaster or dryer fire or even unemployment and debt can take all of the things away. Real security comes from peace of mind.

In some of the places I shared my declutter pic yesterday, I captioned it, "I'd considered that the DVDs on my shelf said something about me. I wonder what it'll say about me to have no DVDs on my shelf." Well, I don't know what it'll say to others, (probably nothing...who notices things like that?) To me, it'll say, "I am a collector of experiences, not things." And, I know, I know, movies are art. What's wrong with collecting art?

Absolutely nothing's wrong with collecting art. But I figure there's so much art in the world, why limit myself with ownership? Better to continuously rotate which art is on display and really enjoy it. No collecting dust.

Another thing to consider with DVDs is that they're losing value fast. Everybody's doing what I'm doing and going digital. I did a lot of research yesterday and I don't think I'm getting more than $8.50 for all 14 DVDs. If I was willing to post them individually and wait for a buyer and mail them, I could get a few bucks more, (depending on shipping costs).

That low number made me want to hold on to them. That's nowhere near their original value. But I figure before long they won't be worth anything. Might as well get my $8.50 and buy a pad thai dinner special with it.

Day 18: 13 Items Decluttered

1-9. Friends: Seasons 1-10, excluding 6 for some reason. This is a big deal, guys. A season of Friends on DVD was my main birthday or Christmas gift for many a holiday. I've watched the series many
times through. When I first moved to L.A., before I had internet or any furniture, I watched these DVDs on a blanket on the living room floor, with a stryofoam take-out container in hand. It was a great comfort after a long drive and the shock of being on my own.
10, 11. That '70s Show, Season 1 and 2. These were originally my mom's. She was a child of the '70s and loved this show. The DVDs stayed with me after I borrowed them. Now she has dementia symptoms from brain tumors from neurofibromatosis, so she wouldn't be able to operate a DVD player or follow the show.
12. Arrested Development, Season One. Great show. I think this was my brothers' DVD set. I better check in with them before I sell it.
13. It's Always Sunny in Philadelphia, The Complete Seasons 1 & 2. Also a great show. Also, I think, my brothers' DVDs.

It's painful to think a brand new TV show season could be $45. I don't know what I'll get for these, but it's probably around $45 for all 13 of them. Thing is, if I only use them when I move and the internet's out, I'd rather have $45 and more shelf space. I can buy digital downloads with that money and save it to an external hard drive. All my DVDs will fit in my hand.


Amazon Affiliate: TV show hyperlinks go to Amazon Prime, video streaming and digital downloads. I receive a commission from Amazon if you buy anything after following one of my links.

Friday, July 24, 2015

Dealing with Difficult Circumstances: A Conversation

“Tomorrow, I’m going to deal with difficult circumstances.”


Family art print by Ana Yael
"Family" by Ana Yael, a curated
Art Print from Society6
My mom isn't doing so well. Her 5-day hospital stay didn't lead to a prognosis for her brain swelling and confusion. We're still in the dark. She has Neurofibromatosis Type II. She always said her biggest fear was being alive but "checked out." I'm devastated that this is happening, but trying to stay positive by focusing on what's actionable going forward. If you want to brighten my day, register to walk with my team for the NF Walk Los Angeles or donate to show your support.

I'm researching ways to deal with difficult circumstances. More accurately, I have to deal with the difficult circumstances of right now, and I hope to find patterns that will help me cope with difficulties throughout the rest of my life.

I'm not even sure what "deal with difficult circumstances" means yet. Does it mean being able to do your job despite personal stress? If so, when do you process the feels? Does "dealing" mean processing the feels so they don't consume you, or knowing how to get back to being okay after they do?


One thing I do know: "dealing" isn't about "not feeling." One of my friends and I have a system in which, if one of us needs to talk, we say, "I have feels." The other person will ask, "Are they big feels?" The friend who needs help says something like, “They’re medium-to-large feels.” And then we share congratulations, because it's so easy to be numb these days. Feelings show us where the love is.


My anger at the hospital's inattention: it's a disguise for the love I have for my mom. 

To see the love behind negatives is to practice gratitude. Maybe having tools like gratitude is the answer to what it means to "deal with difficult circumstances." I still want some sort of metric to measure my "dealing" by, but I have to come to terms with: that might not be possible. I don't have a strict definition of "success," so why do I need a clear picture of what "dealing" or "coping" look like?

Let's all just feel what we feel.


In the spirit of feels, here's 5 things that I've been returning to a lot lately because they make me feel feelings:

1. "What We Gained in the Fire" by the Mynabirds. Incredible song. My imagination takes me somewhere different every time I hear it. I don't know why YouTube kept taking me out of full screen mode at the end of each play-through, as if I wasn't going to push play and watch it again, over and over.

2. "IDGAF" by Watsky. I love how the video is Watsky having a party with the monsters under his bed. It's a rap about the freedom of living in the moment and having meaningful priorities. And speaking of...

3. "The Subtle Art of Not Giving A F***" by Mark Manson. This article is my new favorite thing. I don't know if it's pent up anger because of the situation back home or my general disdain for decorum, but I find all the curse words refreshing. It's also funny ("I don’t even know what that sentence means, but I don’t give a [f***]. A bag of burritos sounds awesome, so let’s just go with it.") and quite thoughtful. Sometimes I read something and think, Maybe I should give up being a writer because that person just said everything I've been trying to say. This is one of those articles.

4. "Today Means Amen" by Sierra DeMulder. A spoken word poem that's like a motivational speech. My favorite line is "You, the teacher, the starter's gun, the lantern in the night that offers not a way home, but the courage to travel farther into the dark." It's absolutely beautiful and I cry every time. Big, ugly cries.

5. Enjoying my cats. Sometimes of think of them as tiny tigers. Today I took videos of me waking them up. I had a distract-able moment and couldn't resist. I love how much their personalities show in their reactions, and I love their fat, happy kitty tummies.



I'm having technical difficulties with the videos.
In the meantime, enjoy these pictures of Jolie and Tyrone.
Here's the link to the NF Walk page again. 
Please feel free to comment below if you have any thoughts on how to define "dealing with difficult circumstances" or want to geek out with me over something in my 5 things list.